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Redefining Genomic Privacy: Trust and Empowerment

Author(s): Erlich, Y; Williams, JB; Glazer, D; Yocum, K; Farahany, N; et al

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dc.contributor.authorErlich, Y-
dc.contributor.authorWilliams, JB-
dc.contributor.authorGlazer, D-
dc.contributor.authorYocum, K-
dc.contributor.authorFarahany, N-
dc.contributor.authorOlson, M-
dc.contributor.authorNarayanan, Arvind-
dc.contributor.authorStein, LD-
dc.contributor.authorWitkowski, JA-
dc.contributor.authorKain, RC-
dc.date.accessioned2018-07-20T15:11:08Z-
dc.date.available2018-07-20T15:11:08Z-
dc.date.issued2014-11-04en_US
dc.identifier.citationErlich, Y, Williams, JB, Glazer, D, Yocum, K, Farahany, N, Olson, M, Narayanan, A, Stein, LD, Witkowski, JA, Kain, RC. (2014). Redefining Genomic Privacy: Trust and Empowerment. PLoS Biology, 12 (10.1371/journal.pbio.1001983en_US
dc.identifier.urihttp://arks.princeton.edu/ark:/88435/pr19x1g-
dc.description.abstractFulfilling the promise of the genetic revolution requires the analysis of large datasets containing information from thousands to millions of participants. However, sharing human genomic data requires protecting subjects from potential harm. Current models rely on de-identification techniques in which privacy versus data utility becomes a zero-sum game. Instead, we propose the use of trust-enabling techniques to create a solution in which researchers and participants both win. To do so we introduce three principles that facilitate trust in genetic research and outline one possible framework built upon those principles. Our hope is that such trust-centric frameworks provide a sustainable solution that reconciles genetic privacy with data sharing and facilitates genetic research.en_US
dc.language.isoen_USen_US
dc.relation.ispartofPLoS Biologyen_US
dc.rightsFinal published version. This is an open access article.en_US
dc.titleRedefining Genomic Privacy: Trust and Empowermenten_US
dc.typeJournal Articleen_US
dc.identifier.doidoi:10.1371/journal.pbio.1001983-
dc.date.eissued2014-11-04en_US
pu.type.symplectichttp://www.symplectic.co.uk/publications/atom-terms/1.0/journal-articleen_US

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