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Strengthening the Reporting of Observational Studies in Epidemiology for respondent-driven sampling studies: “STROBE-RDS” statement

Author(s): White, Richard G; Hakim, Avi J; Salganik, Matthew J; Spiller, Michael W; Johnston, Lisa G; et al

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Abstract: Objectives: Respondent-driven sampling (RDS) is a new data collection methodology used to estimate characteristics of hard-to-reach groups, such as the HIV prevalence in drug users. Many national public health systems and international organizations rely on RDS data. However, RDS reporting quality and available reporting guidelines are inadequate. We carried out a systematic review of RDS studies and present Strengthening the Reporting of Observational Studies in Epidemiology for RDS Studies (STROBE-RDS), a checklist of essential items to present in RDS publications, justified by an explanation and elaboration document. Study Design and Setting: We searched the MEDLINE (1970e2013), EMBASE (1974e2013), and Global Health (1910e2013) databases to assess the number and geographical distribution of published RDS studies. STROBE-RDS was developed based on STROBE guidelines, following Guidance for Developers of Health Research Reporting Guidelines. Results: RDS has been used in over 460 studies from 69 countries, including the USA (151 studies), China (70), and India (32). STROBE-RDS includes modifications to 12 of the 22 items on the STROBE checklist. The two key areas that required modification concerned the selection of participants and statistical analysis of the sample. Conclusion: STROBE-RDS seeks to enhance the transparency and utility of research using RDS. If widely adopted, STROBE-RDS should improve global infectious diseases public health decision making
Publication Date: Dec-2015
Electronic Publication Date:  1
Citation: White, Richard G, Hakim, Avi J, Salganik, Matthew J, Spiller, Michael W, Johnston, Lisa G, Kerr, Ligia, Kendall, Carl, Drake, Amy, Wilson, David, Orroth, Kate, Egger, Matthias, Hladik, Wolfgang. "Strengthening the Reporting of Observational Studies in Epidemiology for respondent-driven sampling studies: “STROBE-RDS” statement" Journal of Clinical Epidemiology, (12), 68, 1463 - 1471, doi:10.1016/j.jclinepi.2015.04.002
DOI: doi:10.1016/j.jclinepi.2015.04.002
ISSN: 0895-4356
Pages: 1463 - 1471
Type of Material: Journal Article
Journal/Proceeding Title: Journal of Clinical Epidemiology
Version: This is the publisher’s version of the article (version of record). All rights reserved to the publisher. Please refer to the publisher's site for terms of use.

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